A global coalition of patient advocates to raise awareness of HD and end the stigma and shame around the disease that has persisted for generations. They organised the meeting with Pope Francis at the Vatican in 2017.
An NGO that helps Huntington’s sufferers in Latin America, lobbies and raises awareness.
Information from the Genetics Home Reference site, US National Library of Medicine.
FAQs about Huntington's from the Australian Huntington's Disease Association.